Fifth child born under shadow of Hurler syndrome
Casey and Brian Hurst welcomed Brock, a healthy‑looking 6 pound 14 ounce baby, only to face a grim diagnosis a month later. Tests confirmed Brock has Hurler syndrome, joining another son with the same condition and leaving the couple to confront a life with a potentially fatal disease.
MENTIONED IN THIS ARTICLE
Hurst
Brock
University Hospitals Elyria Medical Center
Casey Hurst
Brian
Brian Hurst
Family of seven faces Hurler syndrome in surprise birth
Casey and Brian Hurst welcomed Brock despite Hurler syndrome after discovering they were carriers. The family now navigates sterile hospital rooms, surgeries, and long therapy as their daily life, with children Bryce, Baen, Casey, Brock, Beau, Brady, and one more. The 25 percent recurrence risk and prenatal testing options weighed against Casey's choice to proceed with the pregnancy.
MENTIONED IN THIS ARTICLE
Casey
Brock
Beau Hurst
Brady Hurst
Brian
Casey Hurst
Cleveland Clinic
Vickie Zurcher
Hurst
Chronicle Telegram invites corrections and contact details
The Chronicle Telegram notes commitment to accuracy and requests readers call 329-7155 to report factual errors and provide corrections.
MENTIONED IN THIS ARTICLE
Chronicle-Telegram
Circulation and Ad Sales Discussion Across Units
Circulation figures and national ad sales trends are reviewed alongside Marketing NIE Production Ad sales. The memo notes cross unit revenue implications and potential coordination needs for integrated ad campaigns and distribution reach.
MENTIONED IN THIS ARTICLE
National Ad Sales
What is Hurler syndrome and the Hurst twins medical saga
Hurler syndrome is a metabolic disease caused by a missing enzyme that allows glycosaminoglycans to build up in organs. The Hurst twins Bryce and Baen, known as the Ginger Twins, underwent a cord blood bone marrow transplant at the University of Minnesota Amplatz Children’s Hospital and receive weekly enzyme therapy at the Cleveland Clinic. Their family fights insurance hurdles after plans for Brock’s transplant were halted, facing mounting medical bills and ongoing surgeries.
MENTIONED IN THIS ARTICLE
Bryce and
Baen
Ginger Twins
University of Minnesota Amplatz Children’s Hospital
Minneapolis
Carol Haight
Brock
Cleveland Clinic
Casey
Brian
Hurst Builders
Cleveland
Keystone
University of Minnesota Amplatz Children’s
Minnesota
Hurst
Anthem
Ohio Department of Health
Ohio
Duke University School of Medicine
North Carolina
Gillette Children’s Specialty Healthcare
St. Paul
Minn
Brian Hurst
Obama Cuba visit tests ties with Rays game and dissidents
The piece notes Obama plans meetings with Cuban dissidents amid a historic game between Cuba's national team and the Tampa Bay Rays. It discusses Cuban-Americans' views on outreach to Havana and the risk of signaling reform, while Cuban Foreign Minister Bruno Rodriguez rebukes the president ahead of the trip.
MENTIONED IN THIS ARTICLE
Tampa Bay Rays
Obama
America
U.S
White House
Castro
Havana
Bruno Rodriguez
Naloxone Standing Orders Spread in U S States
The article reports that naloxone distribution is expanding under standing orders, with New Mexico becoming the 29th state to allow prescribers to issue a standing order enabling pharmacists to supply the overdose drug. Baltimore police, EMTs, and ER doctors have used naloxone to save tens of thousands of lives. CDC funded efforts support this program.
MENTIONED IN THIS ARTICLE
U.S
Centers For Disease Control and Prevention
Baltimore
New Mexico
Also Mentioned on This Page
Bryce
Michigan
Fantasy
Pennsylvania
Cash
West Virginia
A.C. Hudnutt
Arthur D. Hudnutt
A. Cooper Hudnutt
Elyria
Lorain County Printing & Publishing Company
Chronicle
Paul B. Martin
Andrew R. Young
William D. Hudnutt
Ann E. Klunzinger
Julie Wallace
Benjamin Nagy
Kevin Aprile
Howard Gollop
Bruce Bishop
Gary Cozart
Jeff Pfeiffer
Ann Jewell
Barb Rusko
Stephens
Bambi Stafirski
Carla Hama
Lorain County Printing and Publishing Company
East Ave
P.O
Hurler
Medline Plus
National Library of Medicine
Melissa Linebrink
Mlinebrink
Chroniclet.com
Mlinebrinkct
Kristin Bauer
Bryce Hurst
Middleberg Heights
Cuba
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