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Parents found XP charity after sheltering daughter from sun
In Claverack New York Caren and Dan Mahar raise funds for xeroderma pigmentosum research and run Camp Sundown a sunless program for XP children. They built a dim home and a dedicated charity after their 12 year old daughter Katie was diagnosed with the rare disorder. The family has raised about 1.5 million dollars and advocates for awareness while seeking a cure.
MENTIONED IN THIS ARTICLE
Claverack
N.Y
Caren
Dan Mahar
Katie
Hudson Valley
Mahars
Neil Johnson
Alice
Johnson
Greensboro
N.C
Dan
Xeroderma Pigmentosum Society
Mahari
Mahar