Sound Off On Christmas Day Custom Appears Again
A reader notes that Christmas Day continues to be celebrated on December 25 with familiar traditions and reminders of the holiday’s fixed date each year.
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Newspaper
Lawrence Journal World
Location
Lawrence, Kansas, United States of America
Date
Mar 03, 2012
Page
4
A reader notes that Christmas Day continues to be celebrated on December 25 with familiar traditions and reminders of the holiday’s fixed date each year.
A brief note directs readers to call 832-7297 or email soundoff ljworld.com for questions. The item provides basic contact channels without additional context or events.
On the street a question about language abilities is noted near Dillons at 1015 23rd Street. Lee report on page 1A records residents asking if others speak languages beyond English amid local chatter.
Matthew, a participant in a Kennedy Krieger Institute study, follows a strict Lorenzo’s Oil based diet to slow disease progression in GLD. He consumes 19 grams of fat daily and 44 milliliters of Lorenzo’s Oil plus 10 milliliters of walnut oil, while undergoing monthly lab work and semiannual MRIs. Funding shortfalls threaten continued support for the study as researchers seek about $500,000 to extend participation through age 13.
The Kennedy Krieger Institute in Baltimore has studied adrenoleukodystrophy for over 25 years and seeks private funds to sustain ongoing research and a 10-year Lorenzo's Oil study. About 70 boys, including Matthew Reimer, participate. Lorenzo's Oil awaits FDA approval and is only available via the study.
Kansas Gov. Sam Brownback declared February 29 as Rare Disease Day. The proclamation notes nearly 7,000 diseases are rare and affect under 200,000 Americans each, totaling about 30 million. About 340 treatments exist, leaving over 15 million Americans without disease specific options. Families face isolation, delays in diagnosis, limited therapies, and reimbursement hurdles.
Health reporter Karrey Britt can be reached at 832-7190. Britt's health blog can be found at WellCommons.com, and follow her at Twitter.com/WellCommons.
The fragment mentions Goo Book TV: After as a title or feature, but lacks clear events, dates, or named entities to form a full summary. No verifiable actions or outcomes present in readable text.
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