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The FOR battle to save Sophia Forshtay in New Jersey
Sophia Forshtay, a 4-year-old in New Jersey, lives with fibrodysplasia ossificans progressiva or FOP, a genetic condition turning muscle and tissue to bone. Doctors at University of Pennsylvania seek the gene trigger, tracing clues from a shark liver derivative to a fruit fly gene, while Sophia’s daily life adapts to flareups and limited movement.
MENTIONED IN THIS ARTICLE
Ort Lee
N.J
Sophia Forshtay
Sophia
Constancy
Philadelphia
Kaplan
Eileen Shore
University of Pennsylvania Medical Center
Penn’s Division of
Metabolic Bone Diseases
Molecular Orthopedics
New Jersey
Uncle Fred
Michelangelo
Boston
John Wozney
Harvard
William Gelbart
Eugenia Anderson
Zasloff
David Forshtay
Sopheeea
Fred Kaplan