High Point Enterprise Newspaper Archives Mar 31 1974, Page 25

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High Point Enterprise (Newspaper) - March 31, 1974, High Point, North Carolina Night mini , sunday March 31,1974 defective newborns Are becoming life or death Issue a a it is it a 4 a it im1 a its the Story of two babies baby a was born three months Early an infant so tiny he was barely recognizable As human with wrists the size of Lead pencils and a neck As big around As a Many a thumb. I he Odds were stacked against Hun from the Start. Just a few years ago a As recently As. Say 1970�? he would t have survived the first few treacherous Days of life. Baby b also was born prematurely and weighed about the same a barely two pounds. In addition he had Pierre Robin syndrome a set of facial deformities that included a deformed car Cleft palate and a Tongue placed too far Back in his Mouth. But doctors were convinced that surgery could Correct these defects. Soon after birth both infants began to have severe breathing difficulties As Many severely premature babies do. At the age of 20 Days baby a was transferred from a Community Hospital to Massachusetts general Hospital which admits about one such severely ill Newborn a Day to its paediatric intensive care unit one of a handful in the state. At that Point his tenuous grip on life was failing. He actually had lost weight since birth. Fluid began to collect in his lungs and he had spells every 20 minutes when he stopped breathing and had to be resuscitated. The Mph doctors put him on a Respirator but the pneumonia worsened. He became anaemic. At one Point his heart went into a wildly irregular beat pattern that had to be tamed with drugs. After More than two weeks of nip and tuck the Mph staff began to wonder if they should continue pouring the hospitals resources into the care of this particular baby at a rate of several hundreds of dollars a Day. But the Young parents who had lost three previous babies were insistent. A this Mother essentially had been pregnant for four years and this was her Only living child a explained Anthony Dimarco one of the doctors in the Case. A this added to our desire and our Hopes a and also to our after 69 Days. Baby a was thought to be Well enough to go Home though still frail and difficult to feed. Five Days later he returned for surgery to repair hernias and after the operation stopped breathing twice. But the staff pulled him through and sent him Home again. He was Back at Mph three weeks later on the Brink of heart and lung failure. By this time he also was having seizures his neck control was poor and his brain Waves were abnormal a All ominous portents of possible brain damage. After a week on the Respirator an attempt was made to see if he could breathe without support but portions of both lungs collapsed. He turned an alarming Blue color and his heart rate slowed dangerously. At this Point Many doctors and nurses at the Mph unit thought the fight for this baby s life should be discontinued a by this time a said the chief nurse on the unit Paula Moynihan a almost no one wanted to take care of this baby. One girl who was new could feel the negative pull on the part of the others who urged her to a take care of the others a the parents informed of the worsening prognosis were so disheartened that they stopped keeping a diary of their baby a condition. But fortunately for baby a by the time of his third admission it was past july i. That s the Dale when a new crop of doctors in training join the unit and there were a few new nurses As Well. As is. Moynihan put it a after july i things Are More Gung to. This mixing of opinions those few positive votes were part of what kept things going for this As a result baby a was pulled through a the smallest Preemie saved by the Mph Crew up to that time. Today he a 22 months old appears to be catching i up in growth and development and seems to react normally. P what about baby in i within 48 hours of birth on top of his respiratory i distress he began vomiting and his belly swelled. A rays revealed a congenital intestinal obstruction. The parents who had been hopeful initially were told that while the individual defects were All correctable the combination of everything made survival very doubtful. They acquiesced and the decision was made not to keep the baby on the Respirator or to perform corrective surgery. I within 18 hours of the decision baby b was dead. By Richard a. Knox Boston was in the next month at least a score of Young couples throughout the nation will face the most agonizing decision in their lives. Fate will decree often without warning that their babies will be born defective in some Way a severely premature physically deformed mentally deficient metabolically imbalanced or with various combinations of the above. Until very recently nearly All these severely defective babies would have died regardless of Medicine s Best efforts. But As or. I. David Todres of the Massachusetts general Hospital Mph Points out since 1971 there has been a Complete turnaround in the prognosis for very Low birth weight babies. Meanwhile Over the past decade there has been correspondingly dramatic Progress in paediatric surgery rendering doctors capable of mending tiny hearts and digestive tracts once considered beyond repair. Armed with such awesome new technologies and techniques doctors now can offer parents of defective newborns a perplexing double edged Choice. We May be Able to save your baby the doctor w ill say but we cannot guarantee he will be whole and Normal. He May be a lifelong physical and mental cripple. Or there is the other option. Sometimes spoken sometimes Only hinted at we can withhold our most aggressive therapies and let nature take its course. In some cases doctors Are going further and saying we can turn off the Respirator or discontinue intravenous feeding. Faced with such a no win Choice More parents and doctors Are opting for merciful death rather than what they View As a hopeless deals in Lite for the mute and helpless infant the dilemma is generating a debate of profound significance in the medical profession. Moreover the highly charged Issue is beginning to be discussed openly As both the professionals and the Public become aware that such decisions Are being made on a daily basis in the special a care nurseries of the largest hospitals to which More and More severely ill newborns Are being referred. The debate is further spurred by such cases As the widely publicized dispute five weeks ago Over a severely deformed baby born to a Portland me., couple. In that Case the parents worried Over the Long term Burden of supporting a severely handicapped child asked the Maine medical Center to halt life sustaining measures and forego corrective surgery. But the attending physician. Or. Martin a Barron jr., argued that the deformities might Well be correctable and persuaded the Hospital to seek an injunction against the parents. A Superior court judge granted the injunction saying in effect that the parents had no right to withhold permission to perform lifesaving surgery. But the child s condition worsened before doctors could act. And he subsequently died. A i just wanted to buy some time a or. Barron explained adding that he would do the same thing again. Earlier he had told a symposium on the Issue at the Mph a i was in a quandary. I Felt i had a pretty Good baby with cosmetic the frequency with which such hard decisions Are being made was first revealed publicly by two v a i e paediatricians or. Raymond s. Duff and or. A. G. M. Campbell in a report last october in the new England journal of Medicine that is still generating Strong comment in the journal s letters Section. Duff and Campbell reported that 43 severely detective infants were allowed to die during a 2�?~2-year period at their Hospital a that is so called a a heroic measures were withheld a because both doctors and parents Felt their children s lives would have been devoid of a meaningful human discussing these decisions at the recent Mph symposium or. Duff told his colleagues a infant a would survive and infant a with exactly the same condition would not. I can t Tell you if that is right. I can Teil you that the decisions were made by the parents and that a Good Deal of sorrow accompanied every decision whether for life or for As two Yale colleagues of or. Duffs wrote in the feb. 28 new England journal of Medicine a it is troubling to us to hear Young paediatric interns ask first a should we Mumm in v no your Chonce to win a career Amateur hairstyling contest win a free scholarship contest to be held monday april i St 7 30 . Call 882-6415 for details artistic Beauty College across from h p. Bank 32712 n. Main St. Tennis from 7b to to perfect the four competitive swim strokes Back breast Butterfly and freestyle. The starts turns and finishes for these strokes will be taught. There is no age limit and any youngster May qualify by swimming 25 Yards on his Back and 25 Yards on his front. For the less skilled swimmer who is interested in competitive swimming a pre stroke class will be held each tuesday and Friday afternoon from 3 30 until 4 . The Back stroke and freestyle stroke will be taught during this class. To qualify for enrolment the youngster must be Able to swim a minimum of 36 feet on his Back and 36 feet on his fronts i azaleas Many size and varieties a Turner landscape co s i Plant place 525 n Hamilton St red school House a open to 00-5 of weekday a a a -8 30 5 30 sat. A a a an Aero of free parking operated by j m Tho Garden How people q juju us a 8.8 a Soa axe i 77cc _ tool Laju <�3 �2 Doza. To it a Zulu axe of Tjce at. Quot 1 i 4 pow a it treat rather than How do we treat we arc fearful that this feeling of nihilism May not remain restricted to the Newborn special care in much the same vein. Prof. Arthur Dyck of the Harvard school it Public health and the Harvard divinity school argued at the symposium for what he Calls the a Equality of life position As opposed to the a a Quality of life stand. In prof. Dycks lexicon the a Equality of life position holds that every infant is implicitly entitled to equal medical attention while the a Quality of life proponents favor weighing the Likely meaningfulness of an infant s life in making a treatment decision. A the he said. Professional service is our trademark a is on what Side do you want to err the Quality of life View favors a Merit system of deciding life and that tends to erode attitudes toward life the Equality of life View can err on the Side of suffering. But to me life is so precious that i would rather live with that the Equality of life View will keep alive our desire to be zealous in protecting the opposite pole was represented just As fervently by Margaret Adams a social worker at the Fernald state school in waver Ley mass. She sees firsthand what she Calls a the Twilight existence a of severely handicapped children who require lifelong institutionalization. A was a social worker i am less concerned about the theoretical considerations a defective on la b Zales Westchester mall phone 883-1640 twill our people make i s number one m we Wil be Happy to style any wig or Hairpiece you have. We guarantee to please you Trisha Jones with 4 years experience has joined our staff. Stop in and meet the girls. Hours 9 30 a m thru 6 . Mon. Thru sat. Wig Pagoda 230 Westchester or. Tei. 882-9714 across from Zaire a half Century of bridal tradition began with our diamonds. A Renaissance Diamond solitaire bridal set. 14 Karat Gold. $350 b embrace bridal set. 7 diamonds. 14 Karat Gold. $450 c. Diamond solitaire Trio set. 14 Karat Gold. Black accents $375 Zaies revolving charge a a is custom charge Banka Encard a master charge r v a american Empress a d ners club a layaway Htu Stra s in Ltd Gea its is naturalized week

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